Tootfinder

"#MECFS saps sufferers of energy and basic physical and cognitive functions.
…the fact that there is neither a diagnostic test nor a validated treatment, places a special duty of rigour on doctors and researchers. But patient care has been compromised, and useful research inhibited, by the conviction of practitioners that ME/CFS is

ME/CFS & the history of bad science
Some nice understated pointiness in this piece from last year, reviewing a paradigm shift which is very much still in progress.
"Short-term and low-cost interventions such as GET and CBT are attractive not because of their evidence base, which has been exposed as flimsy and unconvincing, but rather because of their seemingly plausible and easily replicated approach..."
#MECFS #LongCovid #MEAwarenessDay

Monbiot flagging up ME/CFS myths
George Monbiot explains the bad science around Graded Exercise Therapy etc.
Good to see awareness of this atrocity becoming more mainstream.
"Despite an overwhelming weight of evidence, the old believers, including Sharpe and Wessely, have continued to try to justify their model ... This is not how science should work."
#MECFS #science #medicine #GeorgeMonbiot #SimonWessely #MichaelSharpe

Gesundheitsminister Lucha klopft sich gerade im @… auf die Schulter, man habe im Land die #PostCovid-Versorgung und PostCovid-Netzwerke aufgebaut und die #MECFS…

ME/CFS & Long Covid free online conference in May
"UniteToFight 2024"
"The biggest community-driven ME/CFS and Long COVID conference ever"
Wed 15 & Thur 16 May 2024
Seeing some cool people on the speaker list for this. Might tune in.
#MECFS #LongCovid

new ME/CFS guidelines from New Zealand
"Symptom management is the focus of treatment with emphasis on pacing – a free energy management technique used to avoid PEM. Ignoring these guidelines can worsen a patient’s condition.
"Robust review of evidence has led to the removal of three previously recommended treatments from international guidelines [inc] Graded Exercise Therapy (GET)... Continuing to perpetuate the prescription of these treatments may cause harm."
#MECFS