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@unchartedworlds@scicomm.xyz
2025-06-29 10:47:13

free webinar on patient-led research into Long Covid & ME/CFS, Wed 9 July 2025
"Patient-Led Research Fund Webinar 2025 ...
"Come see the results and latest progress from the 10 studies funded by the Patient-Led Research Fund — biomedical research projects selected by a panel of patient-researchers with both scientific expertise and lived experience of Long COVID and/or ME/CFS.
"Wednesday, July 9
10:00 am – 1:30 pm PT
1:00 pm – 4:30 pm ET"
(which I think is 6pm-9.30pm UK time)
#MECFS #LongCovid #research

@JSkier@social.linux.pizza
2025-07-29 15:32:47

The humidity wasn't great, but it felt decent with the temp under 70°F 😀
I haven't been able to do these morning runs in awhile, #insomnia, albeit somewhat managed with meds, and fatigue from #longcovid just makes getting it out of bed and going right away really hard. Hopeful…

@w6kme@mastodon.radio
2025-07-25 02:20:33

Another round of pulmonary function tests at UCLA today. This time I passed out in the Magic Box. Is that a result?
#LongCovid

@kerstinsailer@sciences.social
2025-06-21 15:30:54

It will also be my first full blown conference attendance since developing #LongCovid so I will have to pace and manage my energy like the strictest school teacher
I will #WearAMask (because #CovidIsNotOver

@funkvolk@mastodon.social
2025-07-21 20:26:27

Guten Abend, ich möchte gerne über Prävention reden.
#Corona #Covid #LongCovid

@roelgrif@mstdn.social
2025-06-12 08:17:53

“Niemand zag aankomen dat het aantal arbeidsongeschikten zo snel zou toenemen”.
Niemand? Wie in de zomer van 2020 zichzelf informeerde over #LongCovid weet dit dus al vijf jaar.
“Vooral jongeren met psychische problemen” … die zullen er heus bijzitten maar je wilt de mensen niet de kost geven bij wie de #LongCovid

@JSkier@social.linux.pizza
2025-07-26 04:13:01

After a day off, my knee seems good. Pushed the distance a little to explore the peninsula on the lake and seemingly public road. That m area seems disserted. Overall, the breeze helped out a lot 🥵
Argh, watch tells me I’m overtraining. 3 days running seems okay though. Physical therapst says daily running is something I could work up to even with #LongCovid, but that seems out of rea…

@DieGesellschafterinLang@swiss.social
2025-08-16 18:15:34

#LongCovid - In der #Schweiz leben rund eine halbe Million Menschen mit Long Covid und ME. - «Niemand fühlt sich zuständig»

@JSkier@social.linux.pizza
2025-08-26 02:10:31

VO₂ max is back, and a better pace, thanks to medications I'm sure. Uppers and downers for #ADHD and #LongCovid 🫠
This is perfect #running weather though: sunny, cool, and a sane level…

@funkvolk@mastodon.social
2025-07-19 11:15:08

So eine verdammte Kackscheiße, don't pardon my French, ich meine das ganz genau so. Danke @… , dass Du dran bleibst.
#LongCovid #MECFS

@better_tomorrow@mastodon.online
2025-06-16 20:27:51

Seit September 2024 gab es nun den 5. Schlaganfall in meinem näheren Verwandten- und Bekanntenkreis. Rechnet man noch 1 Jahr drauf, ist es schon der 7. Ist aber bestimmt normal bzw. alles nur Zufall.
#Stroke #Schlaganfall

@unchartedworlds@scicomm.xyz
2025-07-15 21:15:06
Content warning: dysautonomia / heatwave

Been a bit under the weather physically for a week or so, and I don't know if it's partly literally a weather thing or what. It feels like maybe the heatwave unsettled my system, and triggered a little echo of the dysautonomia I had after covid. Could be there was a connecting factor of getting slightly dehydrated, could just be the heat itself and the bodily effort of keeping cool.
#dysautonomia #heatwave #LongCovid

@JSkier@social.linux.pizza
2025-06-11 02:07:22

I used to think this was a great example of working in production. Now, it's more like day-to-day living with #longcovid
Lumbar puncture was today, so no exercise or working too hard for 48 hours. Not a bad thing, I suppose 🤔

@JSkier@social.linux.pizza
2025-07-07 20:25:54

Lunch run, pretty hot, but the sky view and urban running make it worth awhile 🙂 Pace was not great, I've had some regression with #insomnia lately, but it's been under control the past few nights - oof #longcovid I'm so tired of it!

@JSkier@social.linux.pizza
2025-06-11 02:15:28

Sunday run day ~ great weather. I keep going with it, stable neck, no pain anywhere when I'm running. It's a drug I can't quit.
I don't know how much time I have left running, but I get the impression it will need to be pried from my cold, dead hands.
#arthritis #LongCovid

@unchartedworlds@scicomm.xyz
2025-06-17 13:49:33

Julia Doubleday on the gamble that covid would be harmless to children
"It’s worth noting that at the time Kulldorff and the rest of the GBD crew were proclaiming COVID’s harmlessness to kids, they couldn’t possibly have had enough information to determine the veracity of their own claims. Viruses like the chickenpox, EBV, HIV, HPV, and HSV often present with mild initial infections but may cause major damage years later. We now know COVID can as well.
"For so-called experts to run with an assumption that an initially mild-presenting acute infection would be long-term harmless was just that; an assumption. They were willing to gamble the health of a generation of children on a guess in order to go “back to normal” because that’s what the oligarchy clamored for. Because it costs money to shut the world economy down. Because people who mattered were angry. Because children aren’t people who matter."
(GBD = Great Barrington Declaration, a bit of 2020 propaganda including the unfounded supposition that everyone who caught covid would be immune forever after)
Overall another excellent pointy article!
#children #covid #LongCovid #CovidIsntOver #GreatBarringtonDeclaration #misinformation